Lack of Awareness of SCD and Stigma

  1. Review these articles below:
Annals: Kneeling Was the First Step for Sickle Cell Disease
HHS: The Measure of Sickle Cell Stigma

2. Review video below:

Suffering in Silence: 100 Years of Sickle Cell Disease in the U S October 27, 2010 (edited)

3. Review supplemental materials for the above video below:

CRISIS: Experiences of People with Sickle Cell Disease Seeking Health Care for Pain
See attached pdf with article “A Systematic Review of Barriers and Interventions to Improve Appropriate Use of Therapies for Sickle Cell Disease “